Category Archives: autism

Aware vs. Informed: Autism, Epilespy, and Bipolar Edition

Awareness is a pretty trendy thing. A big deal is made of breast cancer awareness, autism awareness, gay rights awareness, human rights violations awareness, etc., especially in privileged groups. If you know about the problem, the logic goes, then it will go away.


The thing about awareness is you don’t have to deal with the messy facts. Instead, you get to paint a subjective picture, preferably one that gets people to give your organization money. Informing people, on the other hand, is more work, because you have to explain things, and you have to get people to look at things differently, and you have to get them to change how they think about basic things. It’s not enough to know that a problem exists. You have to know why it’s a problem, and why it would be better if the problem was gone. You have to know what it’s like to live with that problem, and you need to eliminate inaccurate stereotypes about the problem. That’s a hell of a lot more work than raising awareness, but informing people actually works. It’s hard, but it gets shit done.

So let’s get some shit done. I’m going to be using some terms you may not be familiar with. I’ve defined the terms I think need the most explanation on the Definitions of Common Terms page, but if there’s a term in here you don’t know, ask me in the comments and I’ll explain it. Read the rest of this entry